Difficult times

Well, there is just too much illness going on around here to stay sane. JadenGrace is not tolerating the chelation we are doing, again. She has tried and had to stop four times now. I was very excited this time because we started a method that might work better for her. It did--for two months. Now her behaviors demand that we stop until we do more testing and figure out what is causing them. So I took her to the lab the other day, held her down--again--(which is no easy feat these days--she weighs 52 pounds and stands as tall as a 6-7 year old) and got blood to send off for a CBC and minerals testing. Right after we left the lab, I nearly cussed because I remembered I could have also gotten some blood to send off for the FragileX testing. I have been meaning to do that for over a year.
Another kit is coming in the mail so I can send her poop to be tested for bacteria. Lovely, isn't it? There is one antibiotic I can use that always seems to help her--Cipro--but I can't use it right now because she is already on Amox for her ear infection. Sigh. Hug me.
It seems Jaden's recovery is always two steps forward, one step back. It is the hardest thing I have ever done and when things are going well, it is something I can do. When she is unhappy, causing trouble and unable to sit still, I feel I can't go on. Today is one of those days.